GulfstreamGuy From United States of America, joined Jul 1999, 647 posts, RR: 1 Posted (9 years 7 months 2 weeks 3 days 15 hours ago) and read 2659 times:
This is very hard for me to write this but today my wife and I found out that our daughter, Savanna, has Pleuropulmonary Blastoma, which is a rare form of cancerous cysts in her lung. We and the doctors initially thought she just had some "regular" cysts, or "blebes" that were causing her lung to deflate but now they know what it really is. I am praying that the surgeons can remove it all but since little is known about this, we just don't know.
I am at Arkansas Childeren's Hospital now and I don't have access to the internet as often as I used to but I am asking you to please include my little girl in you thoughts and prayers and I will try to check on any responses when I can.
Thank you all.
"If we couldn't laugh, we would all go insane. " -Jimmy Buffett
Vaporlock From , joined Dec 1969, posts, RR:
Reply 13, posted (9 years 7 months 2 weeks 3 days 12 hours ago) and read 2546 times:
Jason, I am so sorry to hear that Savanna is still ill and in the hospital. I know she has been ill for some time and she has been in my thoughts and prayers. It is always so hard to say the right thing when something like this happens.
My heart goes out to you, your wife and family and of course Savanna. Stay strong and I hope you get good news soon.
It is so unfair that someone so precious has to go through something like this....
Flyingbabydoc From , joined Dec 1969, posts, RR:
Reply 18, posted (9 years 7 months 2 weeks 3 days 8 hours ago) and read 2472 times:
Quoting GulfstreamGuy (Thread starter): I am praying that the surgeons can remove it all but since little is known about this, we just don't know.
That is really weird, that yours and DL021's daughter have such a similar condition (pneumothorax) occuring at the same time.
Blastomas are tumors that originate from very immature, embryonally derived cells. The good thing about it is that the usually respond to other complementary forms of treatment, such as chemotherapy or radiotherapy. Here is a simplifyed version of the definition of these seldom tumors.
Pleuropulmonary blastomas are rare tumors that usually occur under the tissue covering the lungs. The tumors may recur or spread, in spite of surgical removal. Responses to chemotherapy have been reported. Radiation may be used when the tumor cannot be surgically removed. A family history of cancer in close relatives has been noted for many young patients affected by this tumor."
I wish your daughter the best luck in the coming days of treatment and in the following "ages" of past-treatment / supervision. And wish her and you and your wife the urgently required steadfastness and perseverance and fighting positive spirit to carry through !
767Lover From , joined Dec 1969, posts, RR:
Reply 23, posted (9 years 7 months 2 weeks 3 days 5 hours ago) and read 2407 times:
I'm so sorry to hear this news. I'm sure it was a shock and your world must be upside down. However, I firmly believe in the medical community and its ability to treat illnesses like these. My thoughts are with you all.
GulfstreamGuy From United States of America, joined Jul 1999, 647 posts, RR: 1
Reply 24, posted (9 years 7 months 2 weeks 1 day 12 hours ago) and read 2336 times:
Wow! Thank you for all the responses! Savanna had an "Echo" test done for her heart and everything was fine and the results from the CT scans showed that nothing has spread into the rest of her body. It was just limited to the one small section of her right lung and a small speck on her left lung. So instead of surgery, she is going to start her chemotherapy on Tuesday. The doctors believe this will wipe out it out completely.
I know the next 8 or 9 months will be very difficult for Savanna but I know GOD will be there every step of the way. Because the chemo will more than likely make Savanna's hair fall out, I will be first in line to shave my head as well!
Thank you all very much for your support and prayers. This is the only place that I am a member of a forum and to know there are people out there like you all throughout the world praying for her makes me feel so much stronger.
I will keep you up to date with her progress and if anyone wants to talk to me they can email me or call me at 501-626-3987.