GulfstreamGuy From United States of America, joined Jul 1999, 626 posts, RR: 6 Posted (7 years 2 months 3 weeks 5 days 5 hours ago) and read 1529 times:
This is very hard for me to write this but today my wife and I found out that our daughter, Savanna, has Pleuropulmonary Blastoma, which is a rare form of cancerous cysts in her lung. We and the doctors initially thought she just had some "regular" cysts, or "blebes" that were causing her lung to deflate but now they know what it really is. I am praying that the surgeons can remove it all but since little is known about this, we just don't know.
I am at Arkansas Childeren's Hospital now and I don't have access to the internet as often as I used to but I am asking you to please include my little girl in you thoughts and prayers and I will try to check on any responses when I can.
Thank you all.
jason
GulfstreamGuy
"If we couldn't laugh, we would all go insane. " -Jimmy Buffett
Bezoar From United States of America, joined Nov 2001, 805 posts, RR: 9 Reply 1, posted (7 years 2 months 3 weeks 5 days 5 hours ago) and read 1526 times:
I will definitely keep your daughter and your family in the prayers, Jason.
I found this link for parents regarding this disease that might be helpful when you go searching for more information:
A340Spotter From United States of America, joined Jul 2003, 1973 posts, RR: 26 Reply 2, posted (7 years 2 months 3 weeks 5 days 5 hours ago) and read 1526 times:
Thoughts and prayers with you and your daughter that she may recover quickly...
JSD
"Irregardless, it's a Cat III airplane, we don't need an alternate!"
Sleekjet From United States of America, joined Jul 2001, 2045 posts, RR: 24 Reply 7, posted (7 years 2 months 3 weeks 5 days 5 hours ago) and read 1475 times:
Will indeed be praying for God's healing power in little Savanna. And for strength and peace for her parents.
Aerobalance From United States of America, joined Sep 2000, 4634 posts, RR: 51 Reply 8, posted (7 years 2 months 3 weeks 5 days 5 hours ago) and read 1470 times:
My thoughts, wishes and prayers are for Savanna, you and your family. The Lord sometimes works in mysterious ways.
Mirrodie From United States of America, joined Apr 2000, 7419 posts, RR: 65 Reply 12, posted (7 years 2 months 3 weeks 5 days 4 hours ago) and read 1438 times:
Jason, Savanna and your family are in our thoughts.
we wish you well and hope to hear of good news soon.
Forum moderator 2001-2010; He's a pedantic, pontificating, pretentious bastard, a belligerent old fart, a worthless st
Vaporlock From Canada, joined May 2001, 3645 posts, RR: 58 Reply 13, posted (7 years 2 months 3 weeks 5 days 3 hours ago) and read 1416 times:
Jason, I am so sorry to hear that Savanna is still ill and in the hospital. I know she has been ill for some time and she has been in my thoughts and prayers. It is always so hard to say the right thing when something like this happens.
My heart goes out to you, your wife and family and of course Savanna. Stay strong and I hope you get good news soon.
It is so unfair that someone so precious has to go through something like this....
Phyllis
Life is a bitch sometimes....Smile, laugh, play~~enjoy every moment~~life is too short!!
Airlinelover From United States of America, joined Jun 2001, 5580 posts, RR: 27 Reply 14, posted (7 years 2 months 3 weeks 5 days 1 hour ago) and read 1382 times:
count my thoughts and prayers in as well.
if you need anything, just send me a PM or email.
chris
Lets do some sexy math. We add you, subtract your clothes, divide your legs and multiply
Flyingbabydoc From , joined Dec 1969, posts, RR: Reply 18, posted (7 years 2 months 3 weeks 4 days 22 hours ago) and read 1342 times:
Quoting GulfstreamGuy (Thread starter): I am praying that the surgeons can remove it all but since little is known about this, we just don't know.
That is really weird, that yours and DL021's daughter have such a similar condition (pneumothorax) occuring at the same time.
Blastomas are tumors that originate from very immature, embryonally derived cells. The good thing about it is that the usually respond to other complementary forms of treatment, such as chemotherapy or radiotherapy. Here is a simplifyed version of the definition of these seldom tumors.
"Pleuropulmonary Blastoma
Pleuropulmonary blastomas are rare tumors that usually occur under the tissue covering the lungs. The tumors may recur or spread, in spite of surgical removal. Responses to chemotherapy have been reported. Radiation may be used when the tumor cannot be surgically removed. A family history of cancer in close relatives has been noted for many young patients affected by this tumor."
I wish your daughter the best luck in the coming days of treatment and in the following "ages" of past-treatment / supervision. And wish her and you and your wife the urgently required steadfastness and perseverance and fighting positive spirit to carry through !
767Lover From , joined Dec 1969, posts, RR: Reply 23, posted (7 years 2 months 3 weeks 4 days 19 hours ago) and read 1277 times:
Gulfstreamguy--
I'm so sorry to hear this news. I'm sure it was a shock and your world must be upside down. However, I firmly believe in the medical community and its ability to treat illnesses like these. My thoughts are with you all.
GulfstreamGuy From United States of America, joined Jul 1999, 626 posts, RR: 6 Reply 24, posted (7 years 2 months 3 weeks 3 days 3 hours ago) and read 1206 times:
Wow! Thank you for all the responses! Savanna had an "Echo" test done for her heart and everything was fine and the results from the CT scans showed that nothing has spread into the rest of her body. It was just limited to the one small section of her right lung and a small speck on her left lung. So instead of surgery, she is going to start her chemotherapy on Tuesday. The doctors believe this will wipe out it out completely.
I know the next 8 or 9 months will be very difficult for Savanna but I know GOD will be there every step of the way. Because the chemo will more than likely make Savanna's hair fall out, I will be first in line to shave my head as well!
Thank you all very much for your support and prayers. This is the only place that I am a member of a forum and to know there are people out there like you all throughout the world praying for her makes me feel so much stronger.
I will keep you up to date with her progress and if anyone wants to talk to me they can email me or call me at 501-626-3987.
"If we couldn't laugh, we would all go insane. " -Jimmy Buffett
25 Kevinl1011: Man! that's good to hear. Along my way in life, I've been fortunate to know a lot of people who survived major childhood diseases. Our A.net brother "
26 ZKSUJ: My prayers are with you, your daughter and your family at this time. All the best and take it easy!!!
27 Toulouse: My prayers and thoughts are with your beautiful little Savanna, you and your family. May she have a speedy recovery.
28 7LBAC111: I truly hope that your daughter (and you as a family) comes through this. All the very best. Mark
29 DL021: Gulfstreamguy....I am, and I know that we all are praying for/thinking of your daughter. I hope that things turn out well for her. Please update us. D
30 AirxLiban: Glad to hear that it hasn't spread to any other part of her body and hope that the treatment is successful. Best wishes for a speedy recovery.
31 Duke: That's a tough situation. Y'all hang in there. Prayers.
32 Aloges: Gladly so, I'm sure she's a trooper. Send her an extra huge smile from me!
33 Msllsmith: Hey, What a beautiful little girl! You and your family are definitely in my prayers. I also have great faith in what the medical community can do for
35 SWA TPA: Our families hearts and prayers go out to your family during this difficult time! You know you can lean on your virtual family any time of the day or
36 ME AVN FAN: My best wishes for a THOROUGH recovery. Two things for you: Do NOT shave your head, it might bother your wife who is certainly "tested" already enough
37 AerospaceFan: Done and done. Your family is in my thoughts and prayers!
38 CO7e7: You and your family are in my prayers. I wish her quick recovery.
39 NWOrientDC10: Good luck with the chemotherapy. I'm sure it will all work out for the better. Good day and good luck. Russell
40 GulfStreamGirl: I wish you and you're girl the best, she is so Beautiful,threads like this are hard for me to read, but more good comes out of them I believe, you're
41 AirworldA320: All the best, thinking of you and your little lass. Daz
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