Matt D
Topic Author
Posts: 8907
Joined: Fri Nov 19, 1999 6:00 am

Info On Rare Disease Wanted

Thu May 15, 2003 9:23 pm

I was talking with someone and he as telling me about how years ago, his brother came down with what is [supposedly] a very rare and potentially devastating and fatal disease. I won't even attempt to try and spell it out, but spelled phonetically it is called "gee-ohm-buhr-æ", if I understood him correctly.

Does anyone know what this is? I've never heard of it. Apparently it is some kind of nerve disorder that can leave you paralyzed, and possibly even put you into sudden cardiac arrest. And the disease can (according to him) set in literally overnight without any warning signs.

Any information would be welcome.
 
KROC
Posts: 18919
Joined: Mon May 08, 2000 11:19 am

RE: Info On Rare Disease Wanted

Thu May 15, 2003 9:45 pm

Matt. Come on my man. I have never seen a bigger setup in my life. 777236ER will not be able to resist this one.

As for an answer to your question, in a serious mannor of course, no doubt there are diseases and such that are very rare and can set in in no time. Luckily (I think) I have no knowledge of such that I could share here, but I'm sure illustrious A.net member 744lyy (or whatever it is) would tell you that a 90 second search on your favorite search engine would yeild you some type of results.
 
Matt D
Topic Author
Posts: 8907
Joined: Fri Nov 19, 1999 6:00 am

RE: Info On Rare Disease Wanted

Thu May 15, 2003 9:47 pm

I know it's a setup. But I'll take my chances anyway. The only reason I didn't do a search is because I don't have a clue as to how to spell it.
 
KROC
Posts: 18919
Joined: Mon May 08, 2000 11:19 am

RE: Info On Rare Disease Wanted

Thu May 15, 2003 9:48 pm

Try searching "rare and/or fatal diseases". Ignore the link to 777236ER's picture and start searching under that.
 
Matt D
Topic Author
Posts: 8907
Joined: Fri Nov 19, 1999 6:00 am

RE: Info On Rare Disease Wanted

Thu May 15, 2003 9:50 pm

I'll give it a try.
 
redngold
Posts: 6673
Joined: Wed Mar 22, 2000 12:26 pm

RE: Info On Rare Disease Wanted

Thu May 15, 2003 10:55 pm

Guillain-Barre Syndrome.

It is a fast-acting viral syndrome that attacks the myelin sheathing around nerves, leading to paralysis. The bad news is that it moves quickly and can make a person ventilator-dependent (due to respiratory paralysis) within hours, and can last months. The good news is that if the person receives appropriate supportive treatment during the period of paralysis, there is a good chance of 75%-100% recovery.

Try these links:

Guillain-Barre Syndrome Foundation: http://www.guillain-barre.com/
Guillain-Barre Syndrome Support Group (UK): http://www.gbs.org.uk/
National Institute of Neurological Diseases and Stroke (USA) GBS page: http://www.ninds.nih.gov/health_and_medical/disorders/gbs.htm


redngold
Up, up and away!
 
Matt D
Topic Author
Posts: 8907
Joined: Fri Nov 19, 1999 6:00 am

RE: Info On Rare Disease Wanted

Thu May 15, 2003 11:00 pm

Thanks Redngold.
 
jwenting
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RE: Info On Rare Disease Wanted

Thu May 15, 2003 11:07 pm

More good news: the shorter the incubation time the smaller the chance you can pass it along to someone else thus potentially causing an epidemic.
That's one of the reasons Ebola hasn't yet killed off all of Africa and most of the rest of the world.
I wish I were flying
 
heavymetal
Posts: 4443
Joined: Fri May 08, 2015 3:37 am

RE: Info On Rare Disease Wanted

Thu May 15, 2003 11:17 pm

That's one of the reasons Ebola hasn't yet killed off all of Africa and most of the rest of the world.

Bear in mind that nature has equipped even Ebola with its' own 'limiter'.....it kills so fast, that an epidemic "burns itself out" quickly. If Ebola incubated like HIV we'd be in trouble.

I think SARS has a fast enough incubation period for 'burnout' too. Hopefully we'll see Asia get on top of it.
 
mirrodie
Posts: 6789
Joined: Wed Apr 19, 2000 3:33 am

RE: Info On Rare Disease Wanted

Thu May 15, 2003 11:52 pm

Redngold, 2 points for you! I was trying to sound it out and just couldn't figure it was GBS.


GBS strikes fast but may be manageable. Good luck.
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