Its been along time since I posted, in fact I believe it was November when I posted last unless I'm mistaken.
I' thought I had better start a seccond part as the first one is probably archived.
Those of you who replyed and sent fantastic messages of support to John, Simon and myself as John had just begun his fight against a malignant brain tumor back in September 2007, may have wondered where I had suddenly vanished to and
I was keeping people updated as often as possible on John's condition.
Here is an up- to- date report.
On 4th of December 2007, John began his radiotherapy treatment and has now almost completed the course.In fact on this coming Friday, 18th January 2008, I am pleased to say. Its been exhausting, travelling back and forth to the hospital, but members of my family have rallied round., taking it it turns to drive to the hospital and back, as well as myself.
I,ve been able to continue working as well. My employer's have been exceptional in their understanding of the situation I am in and I have kept them fully informed of any developments,and they have given total co-operation. I can't fault them whatsoever. However, there is still along road ahead.
John has coped so well with the treatment and has had very little side effects apart from losing some of his hair permenantly ( radiation kills any hair growth and the hair roots dead!). He hasn't lost his food appetite, in fact I've had to stop him raiding the fridge for food.
John will be placed on a followup program after Friday. He will return to the hospital on 19th February 08, to check on his progress. His medication , on instruction from the Oncologist is to alter slightly from today, that is, a small reduction.
It is hoped that as John is weaned off Dexamethasone, he will not have any seizures. I'm pleased to say that he has not had any more since he was initially taken ill, on 16th September 2007. Recent blood tests done by his own GP
revealed an almost perfect report on his general health ( apart from the tumor). The only worry is his Cholestorol level which is rather high at 10.8. The dexamethasone and Zoton tablets are the main culprits , so they have to go! It means a strict diet as well.
Unfortunately, the trapped sciatic nerve problem hasn't been cured.John is on nerve block tablets, and strong one's at that, but it appears that they are now only giving moderate relief from lower back and leg pain. That is going to be addressed by another specialist soon, so we await a letter of admission for that. There are two options for this.
1. A nerve block injection ( like an epidural ) which will last for a couple of months at a time. or,
2. An operation to "release" the nerve trapped, between the two discs.
The latter , may seem the better option, but it isn't without risk, as is with any operation and isn't guaranteed to be successful either.
Another big worry is the financial impact that this has all had.
We are locked in a battle to reduce our mortgage, as well as reducing the payments on our credit card. The insurance on the mortgage will last for another 8 months before we are subject to full payments again. As well as having to fight to get benefits toward some of our Utility bills, there is all the stress of having to chase other claims, such as Incapacity Benefit, Income Support, Working Tax Credits and getting help with things such as the cost of dental treatment and eye care. Its the filling in of form's, then another form and another form and the checking of what income you have been earning. Its going to be tough and I may yet be forced to sell the home and move into rented accommodation in the future, if things get bad.
Well , I will close for now.
Wishing you all good health and a Happy New Year to all A-netters all over the globe.
Peace to you and will write again soon.
Being ill sucks. Never take life for granted!!