SESGDL
Topic Author
Posts: 2621
Joined: Sat Jan 13, 2001 6:25 am

Undiagnosed Health Problems?

Fri Sep 03, 2010 6:26 pm

I've had a rough year in 2010. I've had a range of health problems and have visited the hospital 6 times and have been to more doctors than I care to count. It all started in December when I got a massive lymph node on my neck and was so fatigued that I could barely move, and things went downhill from there. After thinking I had cancer (lymphoma or leukemia) I became more anxious than I've ever been. Over time the lymph node shrunk and I returned to feeling normal until March when suddenly I got severe chest pains and nearly passed out. At the hospital I was given the gamut of tests and hooked up to an EKG; everything was normal. Since then I've had various dizzy spells, abdominal pains that come and go, sharp pains in my head, blurry vision, vomiting spells, intermittent fevers and nausea, cold sweats in my sleep, and some of the worst fatigue I've ever experienced. It's gotten so bad that I quit my job in June because I just couldn't muster the energy to deal with work. To make things worse, I'm finishing up my master's degree and can hardly function when I'm in class. It's been a constant struggle to maintain any semblance of sanity, and after my last doctor's visit when I was once again reassured that everything is fine and that my initial anxiety may have caused all the subsequent problems I've experienced, I began to think maybe I was really okay. I felt better for about a week and then bam, five days ago I'm vomiting my guts out and feeling sick as a dog again.

I'm just ranting to anyone who will listen. I'm kind of running out of options, I feel horrible but I can't get any positive results for anything and no one seems to really believe how awful I feel. I need to get a job but I simply can't work feeling sick all of the time. Has anyone else ever experienced anything remotely similar?

Jeremy
 
MadameConcorde
Posts: 9218
Joined: Fri Feb 23, 2007 5:08 pm

RE: Undiagnosed Health Problems?

Fri Sep 03, 2010 6:52 pm

I am having my share of serious medical problems at the moment too. It will get even more serious if not quickly taken care of. It is already alarming. I understand where you are at.

Have you had all the blood tests done - I suppose you have had it done spending all that time in the hospital. What is your level of vitamins? Minerals, thyroid, calcium, magnesium. Are they normal or are they really low? or too high maybe?

Have you tried alternative medicine at all? I am not saying they have the answers but sometimes they do or at least they can complement the hospitals and specialty doctors.

We are never taking care of ourselves well enough - we have bad diets, we eat junk foood or smoke or drink or live too much of a stressful life just to earn money until the real problems start showing up.

I don't know what to say. Try and get advice from several different medical sources. Maybe even see a good acupuncturist? The internet is also a very good source of medical information. I am using it quite a bit and learning a log.

Please keep us updated with your situation. Don't give up. I hope you will find a way to recovery very soon.
There was a better way to fly it was called Concorde
 
SESGDL
Topic Author
Posts: 2621
Joined: Sat Jan 13, 2001 6:25 am

RE: Undiagnosed Health Problems?

Fri Sep 03, 2010 7:02 pm

Quoting MadameConcorde (Reply 1):
Have you tried alternative medicine at all? I am not saying they have the answers but sometimes they do or at least they can complement the hospitals and specialty doctors.

That's the next step I think I'm going to take, seeing an alternative medicine doctor. Every test I've had has shown absolutely normal results.

Quoting MadameConcorde (Reply 1):
I don't know what to say. Try and get advice from several different medical sources. Maybe even see a good acupuncturist? The internet is also a very good source of medical information. I am using it quite a bit and learning a log.

I agree, I've looked all over the internet and have spoken with numerous people with almost identical symptoms to mine, each of whom has been able to find nothing. Some people said it eventually just went away, something that I pray will happen to me.

Quoting MadameConcorde (Reply 1):
Please keep us updated with your situation. Don't give up. I hope you will find a way to recovery very soon.

Thank you so much for the positivity and support. The same to you. It's nice talking to someone who knows what it's like to lose control of your health, something so many of us (me included) take for granted until we lose it.

Jeremy
 
MadameConcorde
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RE: Undiagnosed Health Problems?

Fri Sep 03, 2010 7:09 pm

I think you are taking the right path. You should go on with it and see what results you can get.
Just get informed - try to find the right answers and see how you can find THE solution.

I find the internet is an incredible source of knowledge that will also allow us not to believe everything that we are being told. Myself I am trying to avoid to get in the hands of Big Pharma. I always try to go as natural as possible yet I want to get my diagnosis from conventional doctors.

The problem with them is they don't look for what might have caused the "disease". They only look to cure you with what's on the market - a lot of time with what "Big Pharma" will provide. Fortunately some of them are open to discussion. Otherwise I will just go and see somebody else. I have been through some horrors in hospitals. I just want to try and avoid more of it. Some doctors can be quite rough.

I refuse to be an experimental object.
There was a better way to fly it was called Concorde
 
Ken777
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RE: Undiagnosed Health Problems?

Fri Sep 03, 2010 7:26 pm

Sorry to hear about your battles.

We generally believe that doctors have extraordinary intelligence and powers, but they're human like the rest of us. When they are presented with symptoms that could be one of a number of conditions they simply start eliminating options. From physical exams to tests to talking with other doctors.

I'll assume that you have had all the tests for frequently seen conditions (like diabetes) and the not as common (like lupus). Also that you had a biopsy of the lump in your neck. Keep copies of all lab and biopsy reports in one file for when you see other doctors, and keep searching.

All the best on finding a cause and getting taken care of.
 
MadameConcorde
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RE: Undiagnosed Health Problems?

Fri Sep 03, 2010 7:43 pm

Why not contact DocLightning, our experrt MD in residence, ask him questions and see what he has to say.
There was a better way to fly it was called Concorde
 
virgin744
Posts: 825
Joined: Sat Nov 13, 1999 5:51 pm

RE: Undiagnosed Health Problems?

Fri Sep 03, 2010 8:06 pm

SESGDL,
Sorry to hear about your health problems, its definitely hard and something that has to be resolved so that you can move on with your life. What I would do is evaluate anything that has changed in your life over the last 9 months or so and try and go simplistic in terms of what you do and diet. Cut out anything that could theortically exasserbate the potential problem such as odd medication that you havent previously been prescribed that's OTC, alcohol, different types of foods such as fast food, greasy, heavy rich etc that could affect you. Once done stick with a basic routine for a while to detoxify/stabilise yourself nutritianally and after some weeks see how it goes, if it helps then you can decide to add in certain foods again one by one.

Certainly consider alternative medicine but I would also strongly recommend you get a second opinion and see another DR. perhaps try and get referred to a specialist if you can..


Good luck & be healthy!
 
LH459
Posts: 793
Joined: Thu Sep 01, 2005 2:41 am

RE: Undiagnosed Health Problems?

Fri Sep 03, 2010 9:58 pm

Quoting MadameConcorde (Reply 1):
Maybe even see a good acupuncturist?

I second this advice wholeheartedly, though you must choose your acupuncturist very carefully. If you leave an acupuncture session with any bruising or pain from the needles, then you need to find a better acupuncturist! That said, acupuncture has helped me tremendously, both with simple complaints like muscle or back pain, and more complex issues like digestive problems and eczema. In every case, I have visited the acupuncturist as a complementary measure, in addition to visiting my primary care doctor or (in the case of the eczema) specialist. Every time, the acupuncture treatments and the invaluable advice provided by the acupuncturist marked a turning point.
"I object to violence because when it appears to do good, the good is temporary; the evil it does is permanent" - Ghandi
 
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OA412
Crew
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RE: Undiagnosed Health Problems?

Fri Sep 03, 2010 11:33 pm

Sorry to hear about the problems you are having. I can only imagine how difficult it must be to be coping with all of that, and I definitely understand the frustration involved in not knowing. I agree with the others in trying to seek out other remedies that may help you. One thing I did not see mentioned above is to use massage (if you can afford to) as a stress relieving technique. It can often work wonders in calming you down and making you feel more centered.

Quoting Ken777 (Reply 4):
When they are presented with symptoms that could be one of a number of conditions they simply start eliminating options. From physical exams to tests to talking with other doctors.

Exactly. Back in June I was diagnosed with inflammation of the iris and have had several opthamology appointments over the last few months. It's one of those conditions that can be caused by a whole host of underlying conditions (some pretty serious, some less so), and can be viral or bacterial and can even be caused by injury to the eye. It also tends to be a one time deal more often than it is a recurring issue, so they generally won't run any tests the first time you go in. But even when they do run the tests, the opthamologists told me that the vast majority of cases tend to be idiopathic (no known cause). Unbelievably frustrating.

Anyway, not to hijack your thread with my problem. I just wanted to let you know that there are others of us out there who have also dealt with the frustration and stress of the unknown. I don't pretend that my condition is similar to yours, but you are free to PM me at any time and just chat or discuss your frustrations.
Hughes Airwest - Top Banana In The West
 
BN747
Posts: 5344
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RE: Undiagnosed Health Problems?

Sat Sep 04, 2010 12:34 am

Sorry to hear about your bad spell there Jeremy, but seriously... health diagnosis in the US is like sitting at a poker table in Vegas. Now you could get lucky and find a doc who really does give a damn and is really paying attention to what is happening to you. But most are just 'good' at acting like they give a damn.

From what you've written, it doesn't sound like any of the doctors have nailed down anything.

So I'll go the advice I gave a female who friend who was facing a seriously bleak out look with a cancerous prognosis.

First, off do a body cleanse, get rid of all the candida yeast in your body. It is the fertile ground in all of our bodies for 99% of illnesses. Do a collective or individual cleanse of colon, intestines, liver, pancreas, all vital organs..they have them at Whole Foods stores in the organic health section. It is expensive. Candida yeast plants itself and is born out of 'anti-biotocs' introduced into your body (usually designed to kill an immediate ailment..but plays host to a string of other latent problems). Our bodies are naturally in-tuned with organic intake, not processed food crap. Yes, change your life-style particularly the source of all your dietary and nutrient ingestion. It'll make a world of difference.

Secondly, get a hold of Kevin Trudeau's 'Natural Cures They Don't Want You to Know About. Trudeau is a bit of a nut..but he has some fantanstic info in their if you get past a lot of his bable about nothing. I've seen proof positive on what his suggestions about certain illnesses can do. It works.

Even if you don't get the book, follow the 1st suggestion just get your body in a pure state of existence. And after that, take a steady supplement of Pro-Biotics to maintain good digestive functionality! You can't lose on this path.

Good luck man,


BN747
"Home of the Brave, made by the Slaves..Land of the Free, if you look like me.." T. Jefferson
 
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WarRI1
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RE: Undiagnosed Health Problems?

Sat Sep 04, 2010 12:45 am

Quoting SESGDL (Reply 2):
I agree, I've looked all over the internet and have spoken with numerous people with almost identical symptoms to mine, each of whom has been able to find nothing. Some people said it eventually just went away, something that I pray will happen to me.
http://www.everydayhealth.com/info/v...2&OVADGRPID=12337683410&OVNDID=ND1


A long shot, but this is a strange disease. Then there is Fibromyalga, both involve fatigue. Good luck.
It is better to die on your feet, than live on your knees.
 
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WarRI1
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RE: Undiagnosed Health Problems?

Sat Sep 04, 2010 12:47 am

Quoting MadameConcorde (Reply 1):
I am having my share of serious medical problems at the moment too.

My best wishs for you also Madame.
It is better to die on your feet, than live on your knees.
 
soon7x7
Posts: 2267
Joined: Thu May 04, 2006 10:51 am

RE: Undiagnosed Health Problems?

Sat Sep 04, 2010 12:56 am

I was married to a nurse...a good one at that but a terrible wife...but she once told me, that no matter what your age...if given the chance, if a doctor looks deep enough he WILL find something. i spent a frightful week in Cardiac care center and had every test under the sun...$20,000.00 bucks later with no insurance, I got a clean bill of health. Most of what I was experiencing was directly attributed to what was gong on inside my head. 12 years later...I am still swimming 40-100 laps a day in pools and surfing 15 foot hurricane waves. Once doctor's get a hold of you, they don't let go....sometimes they are blatantly necessary, but not always...Stress contributes to more physical ailments than anything else I can relate too...find some pleasing hobbies. You'll be fine...
 
johns624
Posts: 1250
Joined: Mon Jul 07, 2008 11:09 pm

RE: Undiagnosed Health Problems?

Sat Sep 04, 2010 12:58 am

Quoting WarRI1 (Reply 10):
http://www.everydayhealth.com/info/v...2&OVADGRPID=12337683410&OVNDID=ND1


A long shot, but this is a strange disease.

I was thinking the same thing.
 
Airstud
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RE: Undiagnosed Health Problems?

Sat Sep 04, 2010 2:05 am

Quoting MadameConcorde (Reply 5):
Why not contact DocLightning, our experrt MD in residence, ask him questions and see what he has to say.

Precisely because Doc is a licensed, board-certified physician, it would be unprofessional and irresponsible of him to offer medical advice via an Internet discussion board. When us non-physician folk offer our advice here, we're just throwing ideas around, but if a medical doctor does it, it's malpractice. Or breach of professional ethics. Or a violation of the hippopotamus oath. OK I don't know exactly what the hell it is, but I do know it's a problem.

I wholeheartedly support the idea of going to an alternative medicine-type person, especially since you've seen an M.D. already and can therefore say you've got that base covered. See, some people will go only to herbalists/accupuncturists/homeopaths and refuse to ever consult with an M.D.; I think that's irresponsible of those people. There's things that alternative healers get right and things that western-style docs get right, and both have their share of misses as well.

Check around your community for nice folks with O.M.D. degrees (Doctor o' Oriental Medicine). I've had some tremendous successes with accupuncture and herbs before.
Pancakes are delicious.
 
AnonymousInSAN
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RE: Undiagnosed Health Problems?

Sat Sep 04, 2010 4:16 am

Jeremy,

My husband's cousin in the Hamptons (NY) has nearly all of your symptoms. She has been to tons of doctors as well. She was just tested for Lyme Disease and was positive. Get tested, it's a simple blood test. The doctor who tested her estimates that she's had Lyme for well over one year. She never had any signs of tick bite, i.e. the bulls-eye rash, etc.

Good luck and I'll be thinking good thoughts for you & Madame Concorde as well.

  
 
ozglobal
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RE: Undiagnosed Health Problems?

Sat Sep 04, 2010 12:03 pm

Jeremy,

Subject to all the caveats on giving medical input over the net, I have a few thoughts to share:

I had Chronic Fatigue Syndrome for 10 years and shared many of your symptoms. However, CFS is just a name for a cluster of symptoms - a Syndrome. Hence, mainstream western medicine still has no analytical understanding of what the mechanics of it are. What may be useful to note is that they all at least agree that something has gone haywire with the immune system which in turn in producing most of the severe symptoms experienced. Therefore it may be that something is causing your immune system to make some pretty wild responses. CFS, Lyme disease, Lupus and others could be well worth investigating, noting that CFS is just what they call a fatigue dominated set of flu like symptoms with no other explanation.

BTW: Don't let them try and tell you you are just depressed, simply because they can't work out what's wrong with you which puts in them in a position of weakness (which they don't like).
When all's said and done, there'll be more said than done.
 
photopilot
Posts: 3087
Joined: Mon Jul 15, 2002 11:16 am

RE: Undiagnosed Health Problems?

Sat Sep 04, 2010 1:22 pm

Quoting soon7x7 (Reply 12):
Most of what I was experiencing was directly attributed to what was gong on inside my head.



BINGO!!!!!!!

It used to be called Hypochondria and today, with the easy availability of the internet, far too many people can easily look up a whole raft of "symptoms" and think themselves into feeling bad. Consciously or unconsciously.

Wellness begins with a positive attitude and outlook. It's as simple as that. Perhaps you need to see a Psychologist or Psychiatrist because mental health is also a very real possibility.
 
CXB77L
Posts: 2608
Joined: Tue Feb 17, 2009 12:18 pm

RE: Undiagnosed Health Problems?

Sat Sep 04, 2010 1:26 pm

Quoting Airstud (Reply 14):
hippopotamus oath

  

Hippocratic Oath.

You're right, though, when non-professionals offer advice of any sort it does come with a sort of caveat that we may not necessarily know what we're talking about. In my case it is ethically irresponsible for a lawyer to give legal advice without seeing that client, interviewing that person and assessing their case in a case-by-case basis rather than just giving someone the general rule which may not always be correct.

I'm sorry to hear of your medical problems, SESGDL, but the only thing I can suggest is to get a second opinion from another doctor.
Boeing 777 fanboy
 
SESGDL
Topic Author
Posts: 2621
Joined: Sat Jan 13, 2001 6:25 am

RE: Undiagnosed Health Problems?

Sat Sep 04, 2010 7:04 pm

Thanks everyone for the suggestions, well wishes and various opinions! I'll keep everyone posted on what I find out and will look into Lyme Disease, Lupus, CFS, and other possible diagnoses.

Jeremy
 
AirframeAS
Posts: 9811
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RE: Undiagnosed Health Problems?

Sat Sep 04, 2010 7:52 pm

Quoting MadameConcorde (Reply 5):
Why not contact DocLightning, our experrt MD in residence, ask him questions and see what he has to say.

The problem is, IIRC, Doc is a kids doctor, a pedictrician (sp?)

Quoting Airstud (Reply 14):
Precisely because Doc is a licensed, board-certified physician, it would be unprofessional and irresponsible of him to offer medical advice via an Internet discussion board.

   It would also violate more laws than you would think....
A Safe Flight Begins With Quality Maintenance On The Ground.
 
kmh1956
Posts: 2854
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RE: Undiagnosed Health Problems?

Mon Sep 06, 2010 2:08 am

I am not a doctor, so will not offer medical advice. What I WILL give you, though, is common sense advice. DO NOT go to an aviation forum to look for advice for a medical problem. My suggestion for you is this: until you can get to see your regular doctor, keep a diary...of EVERYTHING. By everything, I mean your sleep patterns, what you eat, what you drink, where you go, work school....absolutely EVERYTHING...note also when symptoms occur, and be specific. Then, when you get to see a doctor or internist or whoever they have a much better idea of what's going on with you and not a general 'Doc, I've not been feeling too good and I've had these symptoms..." kind of thing.

By keeping such a diary you may well be able to find a trigger or common link to all or some of your problems...

Really hope this helps...it helped a friend of mine....and good luck. Keep us posted.
'Somebody tell me why I'm on my own if there's a soulmate for everyone' :Natasha Bedingfield
 
TUNisia
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RE: Undiagnosed Health Problems?

Mon Sep 06, 2010 3:27 am

Just my humble opinion here...

Your anxiety seems to be causing a lot of this. I'd take lots of long walks outside in nature if I were you (at least 5 miles a day)... mother nature may not sure you, but she will soothe your soul! Also, drink some relaxing tea (chamomile) before bed.

If your pain and anxiety continue you could consult an acupuncturist. I had terrible TMJ pain in my ear and jaw from the muscles going into spasm. This went on for weeks... all the hospitals and doctors wanted to do was give me pain meds and nothing worked.

So, I went for acupuncture therapy! The doctor was a family friend. He's actually an orthopedic surgeon in China, but the US doesn't recognize his degree & training but he also practices in acupuncture. After one treatment I was cured, but I did get two more treatments. I was very skeptical at first, but it was a miracle almost. Haven't had the pain since!

I'm a great believer in keeping chemicals (from big Pharma) out of my body!
Someday the sun will shine down on me in some faraway place - Mahalia Jackson
 
AMS
Posts: 1620
Joined: Thu Aug 14, 2003 7:34 am

RE: Undiagnosed Health Problems?

Wed Sep 08, 2010 10:41 pm

It is important to get a CBC Blood test taken (Complete Blood Count). Many illnesses will come out from this test (If any). If your doctor already conducted a CBC then he should look at different options to determine your sickness.

I agree that doing a Detox is good, however before you start a detox you should make sure that your blood works are in good order.

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